. | Theme 1: Challenges Facing Youth With Diabetes . | Theme 2: Role of the Family . | Theme 3: Support From the Community . |
---|---|---|---|
Concepts | Parents’ perceptions of the challenges faced by their children with diabetes | Parents’ perceptions of the family’s role in the management of their children’s diabetes | Parents’ perceptions of the community’s role in the management of their children’s diabetes |
Subthemes with representative quotes | 1. Acceptance of the diagnosis (n = 6) | 1. Parental supervision and oversight (n = 11) | 1. Employers: job insecurity (n = 10) |
“She was diagnosed with diabetes since 7 years old; gradually she learned how to check . . . her own [blood glucose] . . . and doesn’t want help from others.” | We . . . do communication time when she comes . . . from school . . . we talk . . .” | “If he misses 2–3 days of work he [will] be fired.” | |
2. Ability to manage distractions and activities of daily living (n = 3) | 2. Parental support (emotional and physical) (n = 11) | 2. School: detailed 504B plan, presence of school nurse, and diabetes knowledge of school staff and peers (n = 7) | |
“She gets up, does her hair and makeup . . . . Priority for her [is] to go out...look[ing] good.” | “I set my alarm (when he has sleepovers) . . . to check [his blood glucose]. [I am] not sleeping much those nights, but it helps him to feel normal . . . and his friends still like to come over.” | “My son peed on himself because he was not allowed [to use the bathroom], and I went to talk to the teacher . . . [who] laughed at me . . . .” | |
3. Lack of positive (supportive) friendships (n = 8) | 3. Sibling support (n = 7) | 3. Medical professionals: availability, conveniently scheduled, efficient appointments (n = 9) | |
“When his friends stay for the night . . . they bring a duffle bag full of doughnuts.” | “We had a scare with her. Her blood sugar went up to 600 [mg/dL]. . . . Now, her brothers will tell me, ‘Mom, we saw her sneaking [food].’” | “[Appointment] is . . . 3–4 hours. I will probably not be back [to work] until 1:00. So that’s . . . [only] 4 hours at work.” | |
4. Lack of neighborhood resources (n = 8) | |||
“Our community leaves us dry. There’s no community outlet or resources.” |
. | Theme 1: Challenges Facing Youth With Diabetes . | Theme 2: Role of the Family . | Theme 3: Support From the Community . |
---|---|---|---|
Concepts | Parents’ perceptions of the challenges faced by their children with diabetes | Parents’ perceptions of the family’s role in the management of their children’s diabetes | Parents’ perceptions of the community’s role in the management of their children’s diabetes |
Subthemes with representative quotes | 1. Acceptance of the diagnosis (n = 6) | 1. Parental supervision and oversight (n = 11) | 1. Employers: job insecurity (n = 10) |
“She was diagnosed with diabetes since 7 years old; gradually she learned how to check . . . her own [blood glucose] . . . and doesn’t want help from others.” | We . . . do communication time when she comes . . . from school . . . we talk . . .” | “If he misses 2–3 days of work he [will] be fired.” | |
2. Ability to manage distractions and activities of daily living (n = 3) | 2. Parental support (emotional and physical) (n = 11) | 2. School: detailed 504B plan, presence of school nurse, and diabetes knowledge of school staff and peers (n = 7) | |
“She gets up, does her hair and makeup . . . . Priority for her [is] to go out...look[ing] good.” | “I set my alarm (when he has sleepovers) . . . to check [his blood glucose]. [I am] not sleeping much those nights, but it helps him to feel normal . . . and his friends still like to come over.” | “My son peed on himself because he was not allowed [to use the bathroom], and I went to talk to the teacher . . . [who] laughed at me . . . .” | |
3. Lack of positive (supportive) friendships (n = 8) | 3. Sibling support (n = 7) | 3. Medical professionals: availability, conveniently scheduled, efficient appointments (n = 9) | |
“When his friends stay for the night . . . they bring a duffle bag full of doughnuts.” | “We had a scare with her. Her blood sugar went up to 600 [mg/dL]. . . . Now, her brothers will tell me, ‘Mom, we saw her sneaking [food].’” | “[Appointment] is . . . 3–4 hours. I will probably not be back [to work] until 1:00. So that’s . . . [only] 4 hours at work.” | |
4. Lack of neighborhood resources (n = 8) | |||
“Our community leaves us dry. There’s no community outlet or resources.” |